Philippine Cerebral Palsy http://philippinecerebralpalsy.org/ Tue, 16 Nov 2021 09:58:01 +0000 en-US hourly 1 https://wordpress.org/?v=5.8.1 https://philippinecerebralpalsy.org/wp-content/uploads/2021/11/cropped-icon-32x32.png Philippine Cerebral Palsy http://philippinecerebralpalsy.org/ 32 32 International recognition for ERH stroke care https://philippinecerebralpalsy.org/international-recognition-for-erh-stroke-care/ https://philippinecerebralpalsy.org/international-recognition-for-erh-stroke-care/#respond Tue, 16 Nov 2021 08:43:17 +0000 https://philippinecerebralpalsy.org/international-recognition-for-erh-stroke-care/ Echuca Regional Health has been recognized for excellence in stroke care nationally and internationally.

The health service received the Angels Gold Status award from the World Stroke Organization in October for meeting the highest standards in stroke treatment and care.

The Angels Initiative aims to optimize the level of treatment in stroke centers around the world and improve patient outcomes by setting global benchmarks for best care practices.

ERH treats approximately 100 strokes each year, with 202 people from the wider catchment area experiencing stroke for the first time and over 3,415 people living with the effects of stroke in the region.

“This award recognizes major developments in stroke care at Echuca Regional Health,” said ERH Executive Director of Medical Services, Dr. Glenn Howlett.

“The collaboration between members of the stroke medical, nursing and paramedical teams provides best stroke care practices to our community. “

The training, protocols and performance of the hospital’s stroke unit were evaluated as part of the Angels Initiative, which includes a goal of restoring blood flow to the brain in more than half of patients. eligible within 60 minutes of arrival at hospital.

ERH Stroke Coordinator Lauren Arthurson said earning WSO Gold status was a great honor and a testament to a team effort to improve stroke care in the region.

“Stroke is an urgent medical emergency where the blood supply to the brain is interrupted or reduced,” she said.

“With every passing minute, more brain cells can be lost and the risk of disability and death increases.

“Acting quickly on signs of stroke and implementing best care practices requires coordination between ambulance, emergency department, radiology and stroke unit staff. “

ERH was also one of 13 hospitals named recipients of the 2021 Australian Stroke Coalition Quality Stroke Service Awards of Excellence, having achieved nine benchmarks in stroke treatment and care.

“Ensuring that the appropriate patients receive anticoagulant therapy within 60 minutes of arriving at the hospital door is the gold standard and means more people will survive and live well after a stroke,” Ms. Arthurson said. .

“Unfortunately, people living in the Australian region have higher stroke rates and face the challenge of providing access to treatment over great distances.

“To solve this problem, Echuca Regional Health is using telehealth technology to ensure that our patients have access to stroke specialists for critical assessment and the development of patient-specific care plans. “

Stroke Foundation Executive Director Sharon McGowan said it was encouraging to see many regional hospitals win the award of excellence this year.

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Study Navigating Future Growth Prospects | Boiron USA, dermalogica, Edgewell Personal Care, WELMEDIX – LSMedia https://philippinecerebralpalsy.org/study-navigating-future-growth-prospects-boiron-usa-dermalogica-edgewell-personal-care-welmedix-lsmedia/ https://philippinecerebralpalsy.org/study-navigating-future-growth-prospects-boiron-usa-dermalogica-edgewell-personal-care-welmedix-lsmedia/#respond Thu, 11 Nov 2021 11:14:26 +0000 https://philippinecerebralpalsy.org/study-navigating-future-growth-prospects-boiron-usa-dermalogica-edgewell-personal-care-welmedix-lsmedia/

Sunburn Treatment Market The research report is a professional and in-depth study of market size, growth, share, demand, market trends as well as industry analysis. This report gives a comprehensive background analysis of the business of Fuller’s Earth, which has an assessment of the parental market. By effectively using technology, innovative applications, and expertise, this Sunburn Treatment market research report has been prepared and effectively manages large and complex market data tables. To achieve desired success in business, this market report plays an important role. Likewise, trends in consumer and supply chain dynamics are also recognized and hence, marketing, promotion and sales strategies are interpreted for extreme success. The type of market, size of organization, on-site availability, type of end-user organization and availability in areas such as North America, South America, Europe, Asia-Pacific and Middle East & Africa are highlighted when creating this Sunburn Treatment Market report. The growth of the sunburn treatment market has been primarily driven by increased R&D spending across the world, however latest COVID scenario and the economic downturn have completely changed the dynamics of the market.

The global sunburn treatment market is growing at a substantial CAGR during the forecast period 2019-2026. The report contains data for the base year 2018 and the historical year 2017.

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An overview of the impact of COVID-19 on the vaccine market:

The emergence of COVID-19 has crippled the world. We understand that this health crisis has had an unprecedented impact on businesses in all sectors. However, that too will pass. Growing support from governments and several companies can help fight this highly contagious disease. Some industries are struggling and others are thriving. Overall, almost all sectors are expected to be affected by the pandemic.

We are making ongoing efforts to help your business sustain and grow during COVID-19 pandemics. Based on our experience and expertise, we will offer you an impact analysis of the coronavirus epidemic in all sectors to help you prepare for the future.

Insights, SWOT Analysis and strategies of each vendor in the Sunburn Treatment market provide an understanding of market forces and how they can be harnessed to create future opportunities.

Quality and transparency are strictly maintained when performing research studies to provide you with exceptional market research report for your niche.

Market drivers and constraints Sunburn treatment

Market factors

The adverse effects of ultraviolet (UV) radiation exposure caused by global warming have fueled the growth of the market

The impact of stratospheric ozone depletion has been linked to the prevalence of sunburn and melanoma skin cancer which is driving the market growth

All age groups are quite vulnerable to the harmful exposure to UV rays, which acts as a major factor in the growth of this market.

Market constraints

Availability of several natural alternative products is slowing the growth of the market

The predominant demand for sunscreens and sunscreen products is also acting as a limiting factor in this market growth.

Lack of knowledge among huge population of developing countries regarding sunburn acts as a limiting factor for the growth of the market

Competitive analysis:

The main players are strongly focusing on innovation in production technologies to improve efficiency and shelf life. The best long-term growth opportunities for this industry can be seized by ensuring continuous process improvements and financial flexibility to invest in optimal strategies. Company profile section of players such as Novartis AG, Boiron USA, dermalogica, Edgewell Personal Care, WELMEDIX LLC, Johnson & Johnson Services, Inc, Bayer AG, Beiersdorf AG, Unilever, ELCA Cosmetics Pvt Ltd, Solar Recover & Zausner LLC, Clinique Laboratories, llc, Water-Jel Technologies , Patanjali Ayurved, Sun Pharmaceutical Industries Ltd, L’Oréal International.

All statistics are represented very carefully using charts, tables and charts in the Sunburn Treatment report for better user experience and understanding. Market analysis, market definition, currency and pricing, key developments and market categorization along with detailed research methodology are the salient factors in this Sunburn Treatment report. All of these factors are of the utmost importance when it comes to being successful in the competitive market. The market information and analysis provided in this market research report is based on SWOT analysis that businesses can be trusted with confidence.

The revised and updated 2018 discussion of the main macro and micro market influences impacting the sector is provided with qualitative commentary to stimulate thought on future opportunities and threats. This report combines the best of two statistically relevant industry quantitative data, coupled with relevant and insightful qualitative commentary and analysis.

Global Sunburn Treatment Market Segmentation:

By administration route: oral, topical and others

By distribution channel: hospital pharmacy, retail pharmacy and online pharmacy

By end users: Hospitals, Home care, Specialized clinics

To know the latest trends and information prevailing in the Sunburn Treatment market, click on the link: https://www.databridgemarketresearch.com/toc?dbmr=global-sunburn-treatment-market

The Sunburn Treatment report gives a clear idea of ​​the strategic analysis of mergers, expansions, acquisitions, partnerships and investments. Company profiles of major market competitors are analyzed based on company snapshot, geographic presence, product portfolio, and recent developments. This market report discusses many aspects of the market. This market research report is general and object oriented. It is framed by the combination of a magnificent experience of the sector, talented solutions, knowledge of the sector and the most modern tools and technologies.

To primarily understand the global sunburn treatment market dynamics, the global sunburn treatment market is analyzed across major regions around the world.

  • North America: United States, Canada and Mexico.
  • South and Central America: Argentina, Chile and Brazil.
  • Middle East and Africa: Saudi Arabia, United Arab Emirates, Turkey, Egypt and South Africa.
  • Europe: UK, France, Italy, Germany, Spain and Russia.
  • Asia-Pacific: India, China, Japan, South Korea, Indonesia, Singapore and Australia.

In this study, the years considered to estimate the market size of Sunburn Treatment are as follows:

Year of history: 2013-2018

Baseline year: 2018

Estimated year: 2018

Forecast year until 2025

Key Stakeholders / Global Reports:

Sunburn Treatment Manufacturers

Sunburn Treatment Distributors / Traders / Wholesalers

Sunburn Treatment Sub-Component Manufacturers

Industry association

Downstream suppliers

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Special Child Care Center opens at Govt Model HSS – The New Indian Express https://philippinecerebralpalsy.org/special-child-care-center-opens-at-govt-model-hss-the-new-indian-express/ https://philippinecerebralpalsy.org/special-child-care-center-opens-at-govt-model-hss-the-new-indian-express/#respond Wed, 10 Nov 2021 01:34:00 +0000 https://philippinecerebralpalsy.org/special-child-care-center-opens-at-govt-model-hss-the-new-indian-express/

Express news service

THIRUVANANTHAPURAM: Many children escaped the monotony of online learning at home and started going to school. However, classes for students with disabilities have not yet started. As part of the Samagra Shiksha Kerala (SSK) program, a special care center for disabled children has been set up at the Government’s Model Upper Secondary School in Venganoor.

According to Venganoor panchayat president RS Sreekumar, around 75 children from different schools in the panchayat will benefit from the special care center which will focus on academic activities. “Many students with disabilities could not cope with online education due to their special nature. Therefore, face-to-face training sessions were needed to help them learn the lessons better. The special center will help ensure the physical and mental well-being of students with disabilities. Even parents faced mental stress due to their children’s inability to cope with online lessons. These special centers will also help provide a support system for parents, ”Sreekumar said.

A survey has been carried out to identify children in need and to join the center, children must have a medical certificate of invalidity. Four specialist educators appointed in the SSK resource block centers will attend classes for the children.

Valsala P, CRC coordinator of the Venganoor panchayat, says: “One of the classrooms of the HSS government model has been converted into a special center. Special children attending regular schools and those who are apprenticed at home will benefit from training sessions. Different study materials such as number and color models will be used to teach the students.

She added: “Every Saturday parents can accompany their children to the center. Parents will also learn to keep their children engaged and socialize with others by taking the necessary precautions. Extra-curricular activities will also be organized for the pupils. “There are currently 12 block resource centers in Thiruvananthapuram district under the responsibility of SSK and special centers for students with disabilities will be set up in each panchayat.

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Health Care Client Alert – The Centers for Medicare and Medicaid Services (CMS) New Rule | Kaufman & Canoles https://philippinecerebralpalsy.org/health-care-client-alert-the-centers-for-medicare-and-medicaid-services-cms-new-rule-kaufman-canoles/ https://philippinecerebralpalsy.org/health-care-client-alert-the-centers-for-medicare-and-medicaid-services-cms-new-rule-kaufman-canoles/#respond Wed, 10 Nov 2021 00:01:12 +0000 https://philippinecerebralpalsy.org/health-care-client-alert-the-centers-for-medicare-and-medicaid-services-cms-new-rule-kaufman-canoles/

The new requirement
Yesterday, November 4, 2021, in addition to the OSHA ETS applicable to most employers with 100 or more employees, the US Department of Health and Human Services (HHS) issued a “Provisional final rule with comment periodKnown as the “IFC,” requiring most hospitals and other Medicare and Medicaid certified providers and providers to develop and implement rules for mandatory COVID-19 vaccination by their employees. HHS estimates that approximately seventeen million employees will be covered by IFC. HHS also released Frequently Asked Questions to assist in the implementation of the IFC.

No test and mask option
Unlike OSHA ETS, CMS IFC does not not allow the substitution of a test and mask option. Compulsory vaccination is compulsory.

Some exclusions
IFC takes the form of several new regulations, each applicable to one or more types of facilities. The regulations have a lot in common with the OSHA ETS, although there are some important distinctions. Generally, regulations impose an obligation to ensure that all staff are fully immunized, “regardless of clinical responsibilities or patient contact”. Employees may, however, be excluded if they practice telemedicine exclusively or work exclusively in a separate outside facility, without contact with patients or other staff. IFC does not apply directly to individual physician practices or other facilities not regulated by CMS.

General requirements
In general, each of the different regulations of the mandate requires that a covered healthcare facility adopt policies and procedures that, at a minimum, include:

  1. A process to ensure that all non-exempt staff have received the first dose of the primary immunization series for a COVID-19 multidose vaccine or a single dose of the Johnson & Johnson vaccine ** before staff provide care, treatment or other services for the establishment and / or its patients by December 5, 2021;
  2. A process to ensure that all staff are fully vaccinated against COVID-19, with the exception of staff who have been granted exemptions or staff for whom COVID-19 vaccination should be temporarily delayed, as recommended by the CDC, due to clinical precautions and considerations by January 4, 2022;
  3. A process to ensure the implementation of additional precautions (as yet unspecified), intended to mitigate the transmission and spread of COVID-19, for all staff who are not fully vaccinated against COVID-19;
  4. A process for monitoring and securely documenting the COVID-19 vaccination status of employees;
  5. A process to safely track and document the COVID-19 vaccination status of any personnel who have been given booster doses as recommended by the CDC;
  6. A process by which staff can request an exemption from COVID-19 vaccination requirements based on applicable federal law (presumably on the basis of religion or disability);
  7. A process for securely tracking and documenting information provided by staff who have requested, and for which the facility has granted, exemption from immunization requirements;
  8. A process to ensure that all documents that confirm the recognized clinical risks for COVID-19 vaccines, and that support staff requests for medical exemptions from vaccination, have been signed and dated by a licensed practitioner who is not not the person requesting the exemption, and who is acting within their respective scope of practice;
  9. A process for ensuring the tracking and secure documentation of immunization status of personnel for whom COVID-19 vaccination should be temporarily delayed, as recommended by the CDC, due to clinical considerations, including, but not limited to, people with acute illness secondary to COVID-19 and people who have received monoclonal antibodies or convalescent plasma for COVID-19 treatment; and
  10. Contingency plans (not specified) for staff who are not fully vaccinated against COVID-19.

Specific directives by type of installation
IFC amends existing federal regulations applicable to outpatient surgery centers; Hospices; Residential psychiatric treatment establishments; All Inclusive Care Programs for the Elderly (PACE); Hospitals (including acute care hospitals, psychiatric hospitals, hospital swing beds, long-term care hospitals, children’s hospitals, transplant centers, cancer hospitals, and rehabilitation hospitals / institutions rehabilitation for inpatients); Long-term care facilities (LTC), including skilled nursing care facilities (SNF); Nursing facilities generally referred to as nursing homes; Intermediate care establishments for people with intellectual disabilities; Home Health Agencies; Complete outpatient rehabilitation facilities (CORF); Critical access hospitals; Clinics, rehabilitation agencies and public health agencies as providers of outpatient physiotherapy and speech therapy services; Community mental health centers (CMHC); Home infusion therapy providers; Rural health clinics / federally approved health centers and end-stage renal disease facilities. The actual regulations governing each installation differ in detail – sometimes important details – and should be read individually.

** Yesterday, the White House issued an announcement attempting to create consistency in vaccination timelines between the CMS rule, OSHA ETS and rules for government contractors saying that “employees reporting to the ETS, CMS or federal contractor rules will need to receive their final dose of vaccination – either their second dose of Pfizer or Moderna, or a single dose of Johnson & Johnson – by January 4, 2022. However, The White House announcement did not address the two-phase structure of the CMS rule.

It is not clear whether an employee’s receipt of a single dose Johnson & Johnson vaccine after December 5, 2021, but before January 4, 2022, would comply with the CMS rule. Although this employee will be fully vaccinated by January 4, 2022, he would not have met the phase 1 requirement under the CMS rule. Our team is closely monitoring any advice from CMS or the White House regarding this inconsistency, and our team is ready to advise clients on navigating their available options.

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SCVNews.com | Henry Mayo Gets National Recognition for Stroke Treatment Efforts https://philippinecerebralpalsy.org/scvnews-com-henry-mayo-gets-national-recognition-for-stroke-treatment-efforts/ https://philippinecerebralpalsy.org/scvnews-com-henry-mayo-gets-national-recognition-for-stroke-treatment-efforts/#respond Tue, 09 Nov 2021 23:59:05 +0000 https://philippinecerebralpalsy.org/scvnews-com-henry-mayo-gets-national-recognition-for-stroke-treatment-efforts/

For the ninth year in a row, Henry Mayo Newhall Hospital received the GoldPlus Get With The Guidelines®-Stroke Quality Achievement Award from the American Heart Association for its commitment to ensuring that stroke patients receive treatment as early as possible. most appropriate in accordance with nationally recognized research guidelines.

Stroke is the fifth leading cause of death and one of the leading causes of disability in adults in the United States On average, in the United States, one person has a stroke every 40 seconds and nearly 795,000 people have a new or recurring stroke each year. Early detection and treatment of stroke is essential for improving survival, minimizing disability and accelerating recovery times.

Get with the Guidelines-Stroke was developed to help healthcare professionals provide the most recent, research-based guidelines for the treatment of stroke patients.

“Henry Mayo is honored to be recognized by the American Heart Association for his commitment to helping our patients have the best possible chance of survival and after stroke,” said Larry Kidd, Ph.D., Henry Mayo Senior Vice President and Chief Clinical Officer. “Get with the Guidelines-Stroke makes it easier for our teams to apply proven knowledge and guidelines every day to improve outcomes for stroke patients. “

Each year, program participants seek recognition for the award by demonstrating how their organization is committed to providing quality care to stroke patients. In addition to following treatment guidelines, participants also provide patient education to help them manage their health and rehabilitation when at home.

Henry Mayo also received the Association’s Target Stroke Honor Roll award. To benefit from this recognition, hospitals must adhere to quality measures designed to reduce the time between a patient’s arrival at the hospital and treatment with anticoagulant plasminogen activator, or tPA, the only drug approved by the United States Food and Drug Administration to treat ischemic stroke.

“We are delighted to recognize Henry Mayo for his commitment to stroke care,” said Lee H. Schwamm, MD, National Chair of the Quality Oversight Committee and Executive Vice President of Neurology, Director of Services acute stroke, Massachusetts General Hospital, Boston, Massachusetts. “Research has shown that hospitals that adhere to clinical measures as part of the Get with the Guidelines quality improvement initiative can often see fewer readmissions and lower mortality rates. “

Henry Mayo Newhall Hospital is ready to serve all patients in need of stroke care. To learn more about Joel Bautista, a recent stroke patient, [click here].

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Veterinarians should receive fewer disability benefits and more assistance in post-military life, ex-SECVA says https://philippinecerebralpalsy.org/veterinarians-should-receive-fewer-disability-benefits-and-more-assistance-in-post-military-life-ex-secva-says/ https://philippinecerebralpalsy.org/veterinarians-should-receive-fewer-disability-benefits-and-more-assistance-in-post-military-life-ex-secva-says/#respond Tue, 09 Nov 2021 20:41:58 +0000 https://philippinecerebralpalsy.org/veterinarians-should-receive-fewer-disability-benefits-and-more-assistance-in-post-military-life-ex-secva-says/

Former Veterans Affairs Secretary Robert Wilkie on Tuesday criticized America’s current veterans benefit system as being too focused on providing financial rewards to sick people instead of helping them overcome these challenges to be successful. after the army.

“We are focused on getting checks from veterans and not getting them right and getting them back into society,” he said at a US university event on Tuesday.

“The purpose of VA is to care for those… who have suffered as a direct result of their military service. In my experience, the encouragement of many of the [support] groups give to people leaving the ward, it’s almost as if they are encouraging them to play handicap. And it’s incredibly destructive to the system.

He suggested that the list of injuries and illnesses qualifying veterans for financial support may be too long, with problems that are more attributable to aging than to military deployments. This in turn encourages veterans to seek payments from the VA instead of finding ways to work and integrate into civilian life.

The comments came during a panel discussion with Daniel Gade, retired U.S. Army Lt. Col. and former Virginia Senate candidate, about his new book on the veterans system. The volume is titled “Wounding Warriors: How Bad Policy Makes American Veterans Sicker and Poorer”.

About 40 percent of all post-9/11 veterans have some type of service-related disability, compared to about 26 percent of all veterans in America today, according to Department of Labor estimates.

Wilkie, who headed Veterans Affairs for nearly three years under President Donald Trump, described the department as “incredibly resistant to reform” and lambasted veteran lobbyists as compounding the problem with their perspective. on the constant expansion of benefits and services, rather than catering. veterans with specific military needs.

“We put those who hold the Purple Heart at the forefront when it comes to compensation and compensation decisions,” he said. “The screams of the professional class were deafening, as was the response from many members of Congress, because they believe that anyone who wears a uniform should be treated like everyone else.

“It is a disconnect that we, as a nation, must resolve.”

Wilkie said his work as head of the department helped reform some of these practices, but not enough.

Gade, a White House staff member during President George W. Bush’s administration, said his book is designed to address discussions of sweeping reforms within the veterans disability process, including the ‘idea that veterans should get compensation or treatment for illnesses that are not directly related to military injuries.

“We pay veterans to be sick, and then we ask ourselves why we have so many sick veterans,” he said.

The comments from the two came at the same time as current VA Secretary Denis McDonough gave the annual “State of the VA” address ahead of the Veterans Day holiday. In it, McDonough swore that “no [veteran] will have to fight to get the quality care, benefits and services they have won.

Veterans Affairs officials processed more than one million disability claims in the past fiscal year, setting a new record of cases, but saw a growing backlog of overdue claims decisions as delays pandemic-related and new eligibility rules have increased staff workload.

Wilkie said improvements cannot be made without fundamental changes in the way veterans groups and lawmakers view the system. But he also targeted “lobbyists in Washington” focused on veterans’ issues as an obstacle to reform rather than allies.

Most of these veteran groups called for Wilkie’s resignation during his final weeks in office, after a series of internal inquiries found he had mismanaged sexual assault complaints filed by a member of Congress who was visiting the Washington, DC VA medical center.

Leo covers Congress, Veterans Affairs and the White House for Military Times. He has covered Washington, DC since 2004, focusing on policies relating to military personnel and veterans. His work has earned him numerous honors, including a 2009 Polk Award, a 2010 National Headliner Award, the IAVA Leadership in Journalism Award, and the VFW News Media Award.

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Nurse Adopts Twins With Rare Disability After Parents Couldn’t Care For Them: “I Fell In Love” https://philippinecerebralpalsy.org/nurse-adopts-twins-with-rare-disability-after-parents-couldnt-care-for-them-i-fell-in-love/ https://philippinecerebralpalsy.org/nurse-adopts-twins-with-rare-disability-after-parents-couldnt-care-for-them-i-fell-in-love/#respond Tue, 09 Nov 2021 19:20:00 +0000 https://philippinecerebralpalsy.org/nurse-adopts-twins-with-rare-disability-after-parents-couldnt-care-for-them-i-fell-in-love/

Although her family and friends sometimes don’t understand her decisions, a nurse’s determination to transform the lives of two little angels is unaffected by the opinions of those around her.

In 2017, 3-year-old twins Matthew and Marshall Trepanier were reported to have oversized, misshapen heads due to Pfeiffer’s Syndrome. They inherited this genetic condition from the father, and because it is type 2, it affects many other parts of the body, including the child’s hands and feet.

Because of this condition, twins need 24/7 care, including hospital appointments, breathing tubes, wheelchairs, and more. Sadly, these children who desperately needed 24-hour help had to be taken away from their birth parents because Child Protective Services (CPS) deemed them unfit.

So it’s a chance that nurses like Linda Trepanier, 58, of Minnesota exist. In the mid-1980s, she gave up her career to become a foster parent of sick children. Speaking of her current lifestyle, she Express:

“When I was little I always thought I wanted to be a nurse and take care of babies and children.”

Until 2017, she had so far looked after 16 children. Those numbers were about to climb to 18 as the adorable twins made their way into her life.

After cheering on the cute duo for a while, social services finally asked if Linda would consider adopting one of the two. However, the nanny, who had fallen in love with the babies, could not separate them, Express:

“When I first saw the twins I thought they were the cutest little things I had ever seen.”

Therefore, Linda declined the offer, and instead of adopting one of them, she kissed them both. The mother said she already knew they were hers and beyond that it was doubtful that other parents would be able to care for two children with their illness.

Although adamant about his decision, many of his relatives were worried. As a mother of 3 older biological children, along with grandchildren, and at retirement age, they wondered why she would take such a responsibility.

“My family and friends think I’m crazy because I’m 58 and should be looking forward to my retirement, but I don’t care.”

If anything, this mother feels privileged helping her babies as much as possible, hoping her care and love will help them grow independent. If anyone can do it, it’s this nurse. This is not only because of his expertise but also because of his heart of gold.

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Bexhill Woman’s ‘Race Against Time’ for Life-Changing Chemotherapy Treatment for MS https://philippinecerebralpalsy.org/bexhill-womans-race-against-time-for-life-changing-chemotherapy-treatment-for-ms/ https://philippinecerebralpalsy.org/bexhill-womans-race-against-time-for-life-changing-chemotherapy-treatment-for-ms/#respond Tue, 09 Nov 2021 16:50:18 +0000 https://philippinecerebralpalsy.org/bexhill-womans-race-against-time-for-life-changing-chemotherapy-treatment-for-ms/

Nikita Hoile was diagnosed with relapsing remitting multiple sclerosis (RRMS) in 2015, but has been suffering from the disease since 2012. “That’s when my first episode happened and I lost my vision, my speech and my ability to walk. Fortunately my body was at a stage where it could repair itself and I recovered, ”she said.

Nikita, from Bexhill, set up a GoFundMe page to try to raise enough money to travel to Mexico in March of next year for the hematopoietic stem cell transplant (HSCT) – an intense 28-day chemotherapy treatment that aims to stop the damage caused by MS by suppressing it and then repelling the immune system, using stem cells from its bone marrow.

She has so far raised over £ 4,000 of the £ 45,000 she needs for private treatment at Clinica Ruiz. Last month, Hastings United Football Club had ground collection buckets for fans to dig deep for their cause.

Nikita Hoile said: “Normally I wouldn’t ask for help with these things, but due to the progression of my MS we are running out of time.”

Nikita said that over the past 10 years she has tried different drugs and disease modifying drugs (DMDs) – but her MS is starting to progress and she is in desperate need of HSCT.

“There are other treatments available, but where all other treatments are aimed at slowing the progression of the disease, HSCT aims to stop the progression completely and allow me to live a normal, healthy life,” he said. she writes on her GoFundMe page.

“I am not eligible for this treatment on the NHS as I must be seen failing a long list of other DMDs, as well as having MS for less than 10 years. As I will soon be turning 10, this is not something that can be done. I also don’t want to wait for my disease to progress and get worse to the point of irreversible permanent disability.

She added, “Normally I wouldn’t ask for help with these things, but due to the progression of my MS we are running out of time. Please don’t think we have taken this decision lightly as it is aggressive treatment and comes with its own risks.

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Mandate rules The mother cannot take care of a disabled daughter https://philippinecerebralpalsy.org/mandate-rules-the-mother-cannot-take-care-of-a-disabled-daughter/ https://philippinecerebralpalsy.org/mandate-rules-the-mother-cannot-take-care-of-a-disabled-daughter/#respond Tue, 09 Nov 2021 16:11:40 +0000 https://philippinecerebralpalsy.org/mandate-rules-the-mother-cannot-take-care-of-a-disabled-daughter/

Covid-19

Although they live together, Sophia Malthus will have to find new caregivers to replace her own unvaccinated mother – expanding her bubble beyond her desire or control.

Sophia Malthus takes containment measures very seriously.

After a spinal cord injury from a horseback riding accident five years ago left her quadriplegic, the 24-year-old needs to be especially alert to the virus that continues to spread in Auckland.

Diseases affecting the respiratory system can be particularly dangerous for survivors of spinal cord injury, who may have an impaired ability to breathe, swallow or cough independently and have decreased overall immunity. Respiratory infections kill more spinal cord survivors than any other cause.

So, every time the lockdown has been called in the past two years, Malthus has been diligent in keeping his bubble small and his risk level low.

“Since the start of this lockdown, I haven’t had a picnic – I’ve left home twice,” she said. Living with her parents and with her mother as one of her primary paid caregivers, she was able to keep her bubble tight and controlled to reduce the risk of infection from outside.

But a clarification made yesterday by the Ministry of Health to its healthcare agency calls into question its ability to continue to do so.

She has learned that by next week, when healthcare workers need to get vaccinated, the agency will be forced to come up with a new plan and replace her mother with other caregivers.

Malthus’ mother is not medically vaccinated, and despite a letter from her attending physician, she has yet to receive confirmation from the Department of Health to be exempt from the warrant.

And with the tenure going into effect next week, Malthus fears he will be caught off guard and forced to inflate his bubble far beyond his comfort zone.

With her mother working five 12-hour shifts a week, her replacement would likely require a number of new caregivers.

“It really scares me, because in all the deadlocks we’ve been in before, we’ve automatically entered a very tight bubble,” she said. “I live with my parents – my stepfather quickly started working from home. And we have three more caregivers coming in, but they were also in very tight bubbles, and I really trust them. “

But now, a rule that is presumably in place to protect her puts her at greater risk.

“This mandate, which aims to protect me, roughly doubles my exposure to Covid,” she said. “I’ll have two or three new caregivers come into the house and they all have their own families that they live with, and everyone wants to go back to work – so my bubble would be bigger than everyone’s bubble.”

The tenure leaves her in the absurd position she still lives with her mother in, but cannot get CCA funding to play the role of caregiver due to the risk she poses on paper by being near. of his own daughter.

“It just doesn’t make sense,” said Malthus. “I could understand the logic if it came from another household.” And she is sure that she is not the only one affected by the rule. Many members of the disability community have members of their household who act as caregivers – especially during the pandemic, when keeping the bubbles manageable has become a part of life.

“I am very scared for myself and for other people with disabilities whose family members are working to reduce their bubble and their risks,” said Malthus.

The solution, she suggests, is to give people with disabilities a little more decision-making power in their own lives.

“People with disabilities should be able to decide who takes care of us,” she said. “You can’t expect the government to look at each person on a case-by-case basis. “

And unless you do, it seems that the general rule of mandate of vaccines for health workers has created at least one counterintuitive situation.

The Ministry of Health’s mandate update of the Covid Ordinance states that healthcare and disability workers must receive their first dose of the vaccine by November 15, 2021 and be fully immunized by January 1, 2022.

“A high rate of vaccinations will help protect staff from disease and transmission of Covid-19 to others,” the Ministry of Health website says after the order details.

This clearly does not apply to Malthus’ mother, who will share her house, whether she is a caregiver or not. But in a time-critical Mandate rollout, situations like that of Malthus and his mother seem to have been overlooked.

“While most of the people working in these sectors are already fully or partially vaccinated, we cannot leave anything to chance and make it mandatory,” Covid Response Minister Chris Hipkins said when announcing the mandate of the health and disability workers early last month.

“It’s not an easy decision, but we need people who work with vulnerable communities who have not yet been vaccinated to take this extra step.

Hipkins made the announcement nearly a month ago, but Malthus said his care agency initially said his mother would not be affected. It wasn’t until this week that the agency got back to the Malthus family and told them that in fact, they were under order.

And with the first doses needed next week, they don’t have much time to come up with another plan.

At this point, all Malthus can really do is hope for a change of mind from the Department of Health.

“I don’t know what to do,” she said.

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Foxburrow Grange wins prestigious care award https://philippinecerebralpalsy.org/foxburrow-grange-wins-prestigious-care-award/ https://philippinecerebralpalsy.org/foxburrow-grange-wins-prestigious-care-award/#respond Tue, 09 Nov 2021 15:55:00 +0000 https://philippinecerebralpalsy.org/foxburrow-grange-wins-prestigious-care-award/

Foxburrow Grange Colchester. Great British Care Awards Winners

Prestigious care award given to Foxburrow Grange staff

Foxburrow Grange wins prestigious care award

The Badger Wing team at Foxburrow Grange Care Home is officially the “Best Care Team” in East England according to the Great British Care Awards

The Badger Wing team at Foxburrow Grange Care Home is officially the “Best Care Team” in East England according to the Great British Care Awards.

– Bonnie Longfoot

COLCHESTER, ESSEX, UNITED KINGDOM, November 9, 2021 /EINPresswire.com/ – The Badger Squadron team at Foxterroir barn Nursing homes are officially the “Best Care Team” in East England according to the Great British Care Awards.

This is a fabulous accomplishment as hundreds of nominations are submitted for the awards each year.

Based near the army garrison at Colchester, Essex, Foxburrow Grange provides housing, nursing and dementia services to 69 people with a variety of care needs, including dementia, Parkinson’s disease, general and specialist nursing, and end-of-life care.

The team was shortlisted as a finalist because of the great work they do, including the incredible transformation of one of the residents who came to Foxburrow Grange in need of care and support.

Following the nomination and an online interview with the judges in early October, team members attended the gala dinner at the East of England Arena in Peterborough on October 28. Around 300 people gathered to promote best practices in the healthcare sector and celebrate the extraordinary work of healthcare workers.

The team had a wonderful evening, culminating in winning their category. They will now qualify for the national finals which will take place next year.

The Best Care Team Award recognizes a team that best demonstrates a shared vision and agreed-upon goals; a team that has a leader whose role is known and accepted and who takes personal responsibility for their tasks. The award recognizes the team which has an excellent communication process and the skills of each member are recognized within the team. The award also recognizes the team who demonstrate a commitment to the dignity and privacy of clients and respect for team members is also paramount.

The Badger Wing specializes in the care and support of people with dementia. People may have lost the ability to take care of themselves, but the team is looking beyond that prognosis and actively supporting them to become more independent and enjoy life.
Since the application of the Montessori Method for people with dementia and aging at Foxburrow Grange, the wing, residents and the house as a whole have grown stronger.

Badger Wing team member Rachel said:

“Being up against 13 other nursing homes, I was really nervous when they called Foxburrow Grange Badger Wing. We jumped in the air and felt so proud of our team because we are a fantastic group. I am overwhelmed, so happy!

Lola Richards, Home Manager, said: “Winning this award is a fantastic achievement. We are extremely proud of the Badger team who, along with all the staff in the house, continue to do an exceptional job with so much passion and dedication.

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Foxburrow Grange is owned by Outlook Care, a non-profit organization that has been providing person-centered care and support since 1990. Outlook Care provides support and care to people with learning disabilities, people with health needs. mental health and the elderly. across north and east London and Essex.
Maximizing independence and allowing people to have choice and control over their lives is at the heart of her work.

Foxburrow Grange is located at Ypres Road, Colchester, Essex CO2 7NL.
For more information about Foxburrow Grange, you can contact Lola Richards, Home Manager, on 01206 586900.

Bonnie longfoot
Outlook care
+441277637535 ext.
Bonnie.Longfoot@outlookcare.org.uk
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