Philippine Cerebral Palsy http://philippinecerebralpalsy.org/ Wed, 05 Oct 2022 13:35:18 +0000 en-US hourly 1 https://wordpress.org/?v=5.9.3 https://philippinecerebralpalsy.org/wp-content/uploads/2021/11/cropped-icon-32x32.png Philippine Cerebral Palsy http://philippinecerebralpalsy.org/ 32 32 Horrific treatment of female Armenian soldiers labeled most serious gender-based violence – NGO – Panorama https://philippinecerebralpalsy.org/horrific-treatment-of-female-armenian-soldiers-labeled-most-serious-gender-based-violence-ngo-panorama/ Wed, 05 Oct 2022 13:00:00 +0000 https://philippinecerebralpalsy.org/horrific-treatment-of-female-armenian-soldiers-labeled-most-serious-gender-based-violence-ngo-panorama/

More than 50 Armenian NGOs have appealed to international human rights institutions regarding Azerbaijan’s latest massive attacks on Armenia. The full text of their statement is provided below.

“Just after midnight on September 13, 2022, Azerbaijan launched a large-scale attack and invasion of the sovereign territory of the Republic of Armenia, shelling civilians, civilian infrastructure and other civilian objects along the border. eastern Armenia and further beyond the front line.Planned in advance, Azerbaijani forces used combat drones, artillery and large-caliber firearms.

As a result, Armenia has 207 soldiers killed or missing, 5 civilians killed and hundreds injured, more than 7,600 civilians have been displaced inside the country. For a country of less than 3 million inhabitants, these figures are significant.

Propaganda of hatred and intolerance towards Armenians in Azerbaijan, supported by the state for decades, is evident here. In addition to evidence of mistreatment, torture, humiliation, mutilation and execution of Armenian POWs, in recent attacks Azerbaijani servicemen also stripped, tortured and executed Armenian servicewomen. Dozens of graphic videos depicting the inhumane treatment and execution of Armenian servicemen and civilians have been voluntarily shared and posted on social media by Azerbaijani servicemen, speaking of a lack of fear of punishment. The particularly horrific treatment of Armenian military women is called the most serious gender-based violence. The cause of this behavior is the deep-rooted misogyny of the Azerbaijani military and society as a whole, as also evidenced by the encouragement and normalization of such offenses on social media by Azerbaijani users.

On September 16, 2021, Armenia filed a complaint before the International Court of Justice (ICJ) against Azerbaijan to combat the Azerbaijani state-sponsored policy of Armenophobia, because of which the Armenians of Nagorno-Karabakh and Armenia have faced systemic discrimination, murder and torture. On August 30, 2022, the Committee on the Elimination of Racial Discrimination issued its Concluding Observations on Azerbaijan expressing its concerns and recommendations to Azerbaijan, stating that “(4) the Committee is deeply concerned about: (c ) incitement to racial hatred and the spread of racist stereotypes against persons of Armenian national or ethnic origin, including on the Internet and social media, as well as by public figures and government officials, and the lack of detailed information on investigations, prosecutions, convictions and penalties for such acts.

On October 2, a new video was released on Azerbaijani Telegram channels, showing Azerbaijani soldiers executing Armenian POWs on Armenian territory. The Armenian mediator confirmed the authenticity of the video.

We, the undersigned, are appalled by the silence and dithering of the international community around this aggression and violence. This silence only serves to embolden the Azerbaijani government and makes it impossible to achieve peace in the South Caucasus. Human rights organizations have a particular responsibility to expose the Azerbaijani government’s impunity and hold it accountable for its gross human rights violations, torture and other breaches of international obligations.

The undersigned Armenian civil society organizations:

• Strongly condemn Azerbaijan’s recent attacks on sovereign Armenian territory, as well as its Armenophobic rhetoric and policies.

• Call on the Azerbaijani government to enter into negotiations in good faith in the interests of real and lasting regional peace.

• Call on the UN Human Rights Council to send rapporteurs to visit and inspect Armenian towns affected by the Azerbaijani incursion, and interview affected residents and witnesses to document and give a direct response to violations of the law by Azerbaijan and hold it to account.

• Call on democratic countries internationally to condemn Azerbaijan’s incursion into the sovereign territory of the Republic of Armenia and to cease all military aid to Azerbaijan.

• Call for sanctions against Azerbaijan for its flagrant violations of international law․

• Call on the EU and US to stop empowering the Aliyev regime amid its gross human rights abuses.

• Call on independent human rights organizations, including Human Rights Watch, to send an urgent mission to Armenia to independently confirm war crimes and crimes against humanity committed by Azerbaijan.

• Welcome the call to the aggressor by various international organizations such as Freedom House, the Lemkin Institute for the Prevention of Genocide, several governments, politicians and members of the human rights community. »

The declaration is signed by:

1․Yerevan Press Club NGO
2․For Equal Rights Educational Center NGO
3․NGO Union of Informed Citizens
4․NGO Public Journalism Club
5․Restart Gyumri- NGO Center Initiative
6․Human Rights Research Center NGO
7․Media Initiatives NGO Center
8 ․ CISC Free Citizen
9․NGO Women’s Right House
10․NGO Protection of Rights Without Borders
11․Center for Community Mobilization and Support NGO
12․NGO Peace Dialogue
13․Foundation for the development and protection of law
14․Helsinki Association for Human Rights
15․Armenian Progressive Youth NGO
16․Transparency International Anti-Corruption Center
17․Committee for the Protection of Freedom of Expression
18․political dialogue NGO
19․NGO Advanced Social Technologies
20 ․ NGO Disability Rights Agenda
21․Democracy Today NGO
22․Civil Youth Center Community Development NGO
23․British – Armenian Human Rights Association
24․Coalition Against Violence Against Women
25․ Granish Literary Community NGO
26․Spitak Helsinki Group Human rights NGO
27․NGO Women’s Resource Center
28․NGO Society Without Violence
29․ONG Women’s Support Center
30․Pink Human Rights Defender NGO
31․NGO Sexual Assault Crisis Center
32․Real World, Real People NGO
33․”Agate” Rights Defense Center for Women with Disabilities NGO
34․Human Rights Power NGO
35․Laboratory of Cultural and Social Narratives NGO
36․Goris Press Club NGO
37․Center for Perspective Development NGO
38․Media Diversity Institute – Armenia NGO
39․OxYGen Foundation for Protection of Youth and Women Rights NGO
40․Freedom of Information Center NGO
41․ “Region” Research Center
42․Open Society Foundations–Armenia
43․ “Bayazet” Armenian Analytical Research Center NGO

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Abuse in care: a necessary transfer of power from the systems to the whānau, says the commissioner https://philippinecerebralpalsy.org/abuse-in-care-a-necessary-transfer-of-power-from-the-systems-to-the-whanau-says-the-commissioner/ Tue, 04 Oct 2022 23:39:00 +0000 https://philippinecerebralpalsy.org/abuse-in-care-a-necessary-transfer-of-power-from-the-systems-to-the-whanau-says-the-commissioner/

Shifting the focus from strong systems to strong families must be the future of care in Aotearoa, a care abuse commissioner has said.

During the Royal Commission inquiry into abuse in care settings, survivors shared their haunting stories of abuse, neglect, loss of culture and disconnection from family and whānau.

While the voices of aggrieved people in faith-based and state institutions have been heard by the commissioners for years, it has become clear to the commission that their voices have been silenced and ignored by the systems designed to be their caregivers during the duration of the survey from 1950 to 1999. .

Following the commission’s final wānanga with international experts on mental health and disability systems, Commissioner Paul Gibson said the examples from overseas and Aotearoa showed change could happen, but only if power shifted from the systems to those of care and their families.

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“The public service has a role to play in resourcing, then listening and making a difference, rather than retaining power and control.

“At the moment suppliers retain too much power and control, and we need to change some of that.”

Paul Gibson is one of the commissioners of the Royal Commission into the Abuse of Persons in Care.  (File photo)

Provided

Paul Gibson is one of the commissioners of the Royal Commission into the Abuse of Persons in Care. (File photo)

Gibson said a culture of devaluing and dehumanizing people with disabilities and mental health issues in government agencies had led to the immediate and continued suffering of those who had passed through institutions such as Christchurch’s Sunnyside Hospital and Lake Alice Psychiatric Hospital in Manawatū.

He said government institutions and gatekeepers held too much power and control over how people and children were cared for to the detriment of their future and personal relationships.

Send your tips, story ideas and comments to poutiaki@stuff.co.nz

“We often promote the idea of ​​service at the expense of your family, relationships, things that protect us, keep us well, and give us a good life,” Gibson said.

“I think there’s a general theme of imagining better and what a great life would look like for each person, each individual. It’s always different, but there are commonalities about relationships, purpose, independence and value.

Dr Michael Kendrick, one of the leading wānanga speakers, recognized for his work in service transformation, said that globally there has been a shift of power from systems of care to people, but that more needs to be done to change the culture of the assumptions made. by service managers.

Dr. Michael Kendrick is well known internationally for his work on service quality and innovation, leadership, service user empowerment and safeguards, said

Provided

Dr. Michael Kendrick is well known internationally for his work on service quality and innovation, leadership, service user empowerment and safeguards, said

“Anyone who has been involved in a system knows that it is quite common for them to disappoint and not do a lot of things, but that leaves us with no way forward because it leaves us thinking that the system is immutable,” said Kendrick.

“[But] most of us lived through this period of great progress and I think what we need to worry about now is not whether it can be done, but whether it can be sustained.

The royal commission will hold its final public hearings from October 13-30, focusing on responses from faith-based institutions.

]]> Nerivio remote electrical neuromodulation could serve as an alternative treatment for chronic migraine https://philippinecerebralpalsy.org/nerivio-remote-electrical-neuromodulation-could-serve-as-an-alternative-treatment-for-chronic-migraine/ Tue, 04 Oct 2022 21:04:26 +0000 https://philippinecerebralpalsy.org/nerivio-remote-electrical-neuromodulation-could-serve-as-an-alternative-treatment-for-chronic-migraine/

Results of a post-hoc analysis of a study evaluating the Nerivio (Theranica) remote electrical neuromodulation (REN) device showed that the treatment did not differ from standard medications in terms of outcomes for patients with chronic migraine . These data suggest that REN may serve as a non-pharmacological alternative for this patient population.1.2

In a cohort of 78 adults with chronic migraine, 62.8% (49 out of 78) of patients treated with REN demonstrated significant pain relief in a single treatment 2 hours after starting treatment, compared to only 48.7 % (38 out of 78) of those on standard treatment. care (P = 0.056). Additional results showed that 64.1% of patients achieved consistent pain relief with REN, compared to 57.7% of those taking standard care medications (P = 0.369).

“Chronic migraine is a particularly disabling condition, diagnosed when a migraine patient experiences at least 15 days of migraine-induced headaches per month,” said lead researcher Brian Grosberg, MD, director of the Hartford Healthcare Headache Program, in a press release.1 “The American Headache Society’s recent consensus statement recommends that, in order to avoid medication overuse, patients with migraine who need to use acute treatments on a regular basis should be instructed to limit the use of medication to an average of two headache days per week.”

In October 2020, Nerivio became the first FDA-approved smartphone-controlled prescription wearable device for the acute treatment of migraine. Since then, it has received additional approval for the acute treatment of episodic and chronic migraine in adult and adolescent patients. Worn on the upper arm at the onset of a migraine attack, the device uses REN to trigger an endogenous analgesic mechanism, known as conditioned pain modulation.

Grosberg added: “Patients with chronic migraine often have 4, 5 or even 6 headache days per week. To treat them safely and effectively, we need to expand standard first-line treatment options beyond prescribed drugs. This research provides a strong comparison of RENs to prescribed medications, primarily triptans, reinforcing the conclusion that RENs provide a much-needed alternative to standard treatment for acute migraine, without compromising efficacy.”1

Study results also showed that pain relief from a single treatment was achieved in 23.1% of people with chronic migraine treated with Nerivio, compared to 19.2% of people on standard medication (P = 0.532). Notably, RENs and reference medications achieved 14.1% consistency of freedom from pain across multiple treatments (P = 1.00).

In October 2021, Theranica published data from a prospective, open-label trial (NCT04194008) to validate and provide additional evidence for the safety and efficacy of Nerivio in a cohort of 126 patients with chronic migraine treated for 4 weeks. Using an electronic diary to record their symptoms, investigators recorded the percentage of subjects who achieved pain relief 2 hours after treatment as the primary endpoint. Freedom from pain and improvement in associated symptoms and functional disability were secondary endpoints. Of the 91 people who received evaluable treatment with REN, 54 (59.3%) achieved pain relief and 19 (20.9%) achieved pain resolution at 2 hours. Additionally, 64.4% of those who achieved pain relief at this time maintained pain relief 24 hours after treatment.3

Earlier this year, in February, a two-part study published in pain medication demonstrated the effectiveness of Nerivio REN when combined with the optional behavioral intervention in Nerivio’s Guided Imagery, Education and Relaxation (GIER) application. Overall, 2 hours after treatment, the REN+GIER group had a statistically significantly higher proportion of patients who achieved consistent pain relief (P = 0.008), constant improvement in function (P = 0.014), and constant return to normal function (P = 0.005) than the REN group only.4

REFERENCES
1. A new study suggests that REN is comparable to standard care medications prescribed for the acute treatment of chronic migraine. Press release. Theranica. September 19, 2022. Accessed September 30, 2022. https://www.prnewswire.com/news-releases/new-study-suggests-ren-comparable-to-standard-care-prepressed-medications-for-acute-treatment – chronic-migraine-301626947.html
2. Grosberg B, Rabany L, Vizel M, et al. Comparison of the efficacy of remote electrical neuromodulation and standard care medications for the acute treatment of chronic migraine: a post-hoc analysis. pain management 2022;12(7):837-844. doi:10.2217/pmt-2022-0053.
3. A published, peer-reviewed study provides further evidence for the safety and efficacy of Nerivio in patients with chronic migraine. Press release. Published online October 18, 2021. Accessed September 30, 2022. https://www.prnewswire.com/news-releases/peer-reviewed-published-study-provides-further-evidence-for-the-safety-and- efficacy-of-nerivio-in-patients-with-chronic-migraine-301402018.html
4. A peer-reviewed study shows a positive impact of Nerivio’s Guided Imagery, Education, and Relaxation (GIER) feature on migraine treatment response. Press release. Theranica. February 16, 2022. Accessed September 30, 2022. https://www.prnewswire.com/news-releases/peer-reviewed-study-shows-positive-impact-of-nerivios-guided-imagery-education-and-relaxation- gier-feature-on-migraine-treatment-response-301483460.html
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Australia will miss 200,000 care workers by 2050 https://philippinecerebralpalsy.org/australia-will-miss-200000-care-workers-by-2050/ Tue, 04 Oct 2022 06:13:55 +0000 https://philippinecerebralpalsy.org/australia-will-miss-200000-care-workers-by-2050/

Australia’s care industry is grappling with a worse-than-expected labor shortage crisis with a projected shortfall of more than 200,000 full-time workers by 2050, according to a ‘secret’ report compiled by the previous Liberal government.

The government Care staff labor market study The report projects that 531,600 full-time equivalent (FTE) positions will need to be filled by 2050, but the country will be short of 211,400 FTE positions.

With half of nursing staff expected to leave within the next three yearsAustralia’s aging population and shrinking labor supply are likely to increase the challenges.

The gap jumps to 285,800 individual workers on a headcount basis taking into account the actual number of employees needed to meet the average working hours of part-time or casual roles.

Skill level 4 occupations – elderly and disabled caregivers, nursing aides and orderlies – will apparently be the hardest hit by future labor supply problems.

The report was initiated by the Liberal government in March 2021 and finalized in September 2021, however, Scott Morrison’s government reportedly kept it secret by not immediately releasing the findings.

Labor Government Skills Minister Brendan O’Connor released an updated version of the report on Monday, revealing there is a projected short-term shortfall of 100,000 older, disabled and mental health workers by 2028.

“This was kept secret because the Liberal government wanted to avoid dealing with the growing crisis facing care workers, particularly care for the elderly, care for the disabled and mental health care and support. said Minister O’Connor.

“Australians deserve to know the truth. Locking a report in a drawer will not fool Australians, who know there is a challenge ahead.

National Skills Commissioner Adam Boyton recently said that COVID-19 had impacted early findings from 12 months ago and that “forecast deviations would be both larger than expected and still emerging. faster than indicated in the study”.

The report also suggests “there is limited evidence of a significant shortage of labor in the care and support sector at the national level at present”, indicating instead that the existing problems stem low wages and skills shortages.

Concerns listed in the report include workers struggling with low average hours and salary below averagewhich in some cases is $523 less than the average Australian weekly income of $1,769.80.

Employers find it difficult to attract competent and qualified personnel, as well as experienced workers who must relocate for a position.

There is no “one size fits all” to address supply and demand issues, with “public perception, new articulations of job design and architecture, technology adoption and innovation rates” listed alongside economic improvement to support the care support workforce.

The government will fund a proposal for a salary increase for the elderly, who currently sits before the Fair Work Commission. The unions are demanding a 25% wage increase.

Minister O’Connor has stated that his priority is to establish the Australian jobs and skills to “accelerate improved workforce planning” for the care sector.

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California revises formula for paid family leave and state disability benefits https://philippinecerebralpalsy.org/california-revises-formula-for-paid-family-leave-and-state-disability-benefits/ Mon, 03 Oct 2022 14:35:51 +0000 https://philippinecerebralpalsy.org/california-revises-formula-for-paid-family-leave-and-state-disability-benefits/

After vetoing a similar bill last year, on September 30, California Governor Gavin Newsom signed Senate Bill 951, which increases wage replacement rates for low-wage earners. under the Paid Family Leave (PFL) program and the State Disability Insurance (SDI).

Starting in 2025, workers earning 70% or less of the average state wage will be eligible for 90% of their normal wage under the PFL and SDI programs. Currently, low-income people can qualify for 70% of their regular salary under these programs.

Although PFL and SDI are state benefits, employees may request these benefits while on unpaid leave, such as under the California Family Rights Act (CFRA) and statute. Federal Family Medical Leave (FMLA). As such, this increase in the state benefit formula may make unpaid leave for low earners more palatable, as it will mean less loss of income.

Earlier this year, California also launched a grant program to help small businesses with costs associated with furloughed employees under the paid family leave program, such as expenses incurred to train existing staff or hire temporary employees during employee holidays.

Susan E. Groff is an attorney with Jackson Lewis in Los Angeles. © 2022. All rights reserved. Reprinted with permission.

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Whanganui man loses lower leg after improper treatment for ingrown toenail https://philippinecerebralpalsy.org/whanganui-man-loses-lower-leg-after-improper-treatment-for-ingrown-toenail/ Mon, 03 Oct 2022 01:07:40 +0000 https://philippinecerebralpalsy.org/whanganui-man-loses-lower-leg-after-improper-treatment-for-ingrown-toenail/ Mr A visited Whanganui Hospital eight times between June and August 2018. Photo/Google maps

A chronically ill man who visited the emergency room six times with a sore toe ended up having his lower leg amputated after his ingrown toenail became gangrenous.

The man, referred to as “Mr. A” in a Health and Disability Commission decision made public today, visited Whanganui Hospital eight times between June and August 2018, six of which were in the emergency department.

His care over those three months has now been criticized by the Assistant Commissioner for Health and Disability, Dr Vanessa Caldwell, who concluded that the WDHB had breached the Health and Disability Services Consumer Rights Code regarding human care, because each patient has the right to quality and continuity of services.

Mr. A, in his 60s, had a complex medical history including type 2 diabetes, heart attacks, stroke, peripheral neuropathy, vascular disease and iliac bypass surgery.

Diabetes can cause reduced blood flow to the feet, making it more difficult for wounds or infections to heal, such as Mr. A’s toenail. Mr. A’s illness contributed to the recurring nature of his infection, including increased risk of gangrene with possible spread of infection to bone.

After several trips to the hospital, Mr. A was diagnosed on August 9 with a severe blockage in his arteries, restricting blood flow. The tissue on his toe was dying off and he was officially diagnosed with gangrene, resulting in his toe being amputated.

Six days later the infection continued to progress and he went to another hospital where his right leg was amputated below the knee.

The commissioner said in today’s decision that a plan of care was never established and that lack of communication between doctors meant the infection was always treated in isolation, reoccurring until amputation point.

Caldwell said she is concerned that despite multiple presentations to the hospital, the man, who has a complex medical history with a chronic condition, does not have a coordinated care plan put in place by senior staff. . “A hospital system would be expected to operate in such a way that a patient who has presented repeatedly with the same problem would benefit from continuity of services, for example by having a dedicated team to oversee , to monitor and plan patient care,” Caldwell said.

She said she would expect the WDHB system to work that way, and it should have been the case with MA.

Caldwell criticized three doctors who were in charge of Mr A’s care and praised the actions of two others.

The Whanganui DHB has since established a “High Risk Foot Clinic” which focuses on care including education and awareness, assessment, diagnosis and development of a care plan, treatment initiation, follow-up and subsequent referral.

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‘Universities don’t care about students with disabilities’: What it’s really like to study with a chronic illness https://philippinecerebralpalsy.org/universities-dont-care-about-students-with-disabilities-what-its-really-like-to-study-with-a-chronic-illness/ Sat, 01 Oct 2022 08:05:25 +0000 https://philippinecerebralpalsy.org/universities-dont-care-about-students-with-disabilities-what-its-really-like-to-study-with-a-chronic-illness/

University, for many young people, is a rite of passage. While there are countless ways to start adult life, many people take those first steps by moving away from home and into college, to experience socializing, cooking, and to learn without parental support.

Wardah is 20 years old and studies Arabic and politics. She spoke to SCREENSHOT about what it was like to socialize as chronically ill student: “I had to push myself during the first year this year because I felt very lonely last year. It certainly made it difficult to make friends. People generally accept that I don’t drink, but the need for rest is often taken as an excuse for not really wanting to go.

Wardah’s experience highlights the limits of people’s understanding of illness – for some reason choosing to stay sober for mental health reasons is becoming normalized, but fatigue is still poorly understood. Refusing an invitation because you are “tired” is not often accepted. People assume coffee or a Red Bull will get you out of it, but when it comes to chronic illness, fatigue is actually fatigue – and it just can’t be cured with caffeine or a nap. .

It takes days to recover from exertion, which also makes multiple evenings a week unsustainable. Wardah continued, “I can’t have the carefree attitude that most students have. I feel different because of the amount of planning I have to do for things that other people see as an opportunity to let off steam.

Isara is 21 years old and studies psychology. She shared a similar experience to Wardah, “I always push myself too far because I still haven’t accepted that my body has changed. I always drink in the evening, even though it makes my symptoms worse. If I don’t, I feel too isolated and like a sick person who can’t drink or have fun. It seems that the pressure to be good, to be outgoing, and to be a party animal remains endemic to young people’s college experiences, despite society’s sense of overcoming that male culture that surrounded institutions in the past.

Although sometimes the social aspect trumps the college experience, studying and taking classes is supposed to be the real focus. Universities in the UK all offer some sort of service for students with disabilities, although the quality varies greatly by institution.

As a student with a chronic illness or disability, there are many paths you can take, but many of them are hard to find. Jamila, another disabled student, told SCREENSHOT about her experience: “There’s the support there if you know where to look. I’m learning new things even now so the signage isn’t there.

Many young people also come to college with undiagnosed illnesses and experiences. Endometriosis, for example, takes an average of eight years to be diagnosed – for many people who menstruate, they can be around 22 when given a name for the chronic pain they have experienced. Without words to describe your experiences and without documentation to prove your illnesses, it becomes increasingly difficult to know what you need and what might help you.

Wardah believes the lack of signage is intentional. “I don’t feel supported by my university. I think they’re doing just enough, but I don’t think they care about students with disabilities,” she shared. There seems to be a common thread among the people I interviewed, the idea that having their needs taken care of comes down to guest speakers and one-on-one tuition.

Wardah went on to say, “This semester I have two modules in which the lectures are either unrecorded or only available online for a few days. Of course, I can’t control how long my flares last or when I need more rest, so it’s not particularly helpful for me.

Enter Jamila, who is now on the other side. As a lecturer, she works with her university to meet access needs for herself and her students. She explained, “I know there is a choice given to us if we want to record our lectures, relating to intellectual property, which is valid, but if you cannot physically enter somewhere, you are missing something. thing. Again, if you fight for it, they can place things specifically for you, but access needs aren’t built in across the board. And that is the crux of inaccessibility in universities, the burden is left to singular students who are forced to ask for what they need, extra, instead of it being the norm to help everyone.

Jamila even said that as a student, attendance caused her anxiety: “I felt a lot of guilt for not having attended, especially during the first two years when I did not receive official support from the university. My presence was always signaled and I was fired at. Attending college seminars feels like a hangover from compulsory education, and measuring the ability of a student with chronic health conditions to complete classes as the equivalent of success in their college work seems not appropriate.

The company is inherently ableist— young people with chronic illnesses grow up feeling like a burden, an inconvenience, as if they didn’t look like their peers. Such discrimination may later manifest itself in a desire to blend in, not to fuss over things that might make college life less stressful for them.

Many of the introductory lectures you receive when you start studying focus on rigorous academic standards, controlled attendance, and the consequences of plagiarism. Much of this chatter, while important, can make students with chronic conditions feel like what they are asking for is extra, cheating, or asking for an easy route. It just isn’t, but persuading your peers and teachers is another task you must undertake as someone with a chronic illness.

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Posters emphasize the prevalence and need for prompt treatment of RVO https://philippinecerebralpalsy.org/posters-emphasize-the-prevalence-and-need-for-prompt-treatment-of-rvo/ Fri, 30 Sep 2022 20:51:33 +0000 https://philippinecerebralpalsy.org/posters-emphasize-the-prevalence-and-need-for-prompt-treatment-of-rvo/ Posters presented at the annual meeting of the American Academy of Ophthalmology showed that patients with retinal vein occlusion (RVO) are most likely older with higher diastolic blood pressure and require prompt treatment to help manage the disease.

Posters presented at the American Academy of Ophthalmology conference revealed data on who is most affected by retinal vein occlusion (RVO) in the United States and how to manage the disease.

The first poster1 presented the results of a weighted analysis that used a multivariate regression model to find risk factors and who was most affected by RVO, a major cause of visual impairment. The study included 5,559 adults 40 years and older who participated in the Nutrition Health and Nutrition Examination study and who underwent retinal imaging. The photographs were scored by ophthalmologists to determine the presence of RVO.

There were 33 cases of RVO found in 5559 participants, of which 27 were branch RVO and 6 were central RVO. The prevalence rates of RVO, branch RVO, and central RVO in the United States were estimated to be 0.50% (95% CL, 0.30%-0.71%), 0.42% (95% CL , 0.23%-0.60%) and 0.08% (95% CL, 0%-0.18%), respectively.

Age (odds ratio [OR], 1.93; 95% CI, 1.31-2.92 per increase over 10 years) and elevated diastolic blood pressure (OR, 1.47; 95% CI, 1.10-2.12 per 10 mm Hg increase) . Race, gender, glaucoma, high cholesterol, and self-reported history of diabetes have not been shown to be risk factors for RVO.

The study had a cross-sectional design, which could not determine causality, and used questionnaires to obtain medical histories, which are subject to bias.

Despite this, the researchers concluded that RVO is associated with older age and higher diastolic blood pressure, which could help identify those most at risk for RVO in the future.

The second poster2 focused on finding the best course of action for RVO management. Post-hoc analysis analyzed the impact of time on outcomes in macular edema following central VOR (MEfCRVO) and macular edema following branch VOR (MEfBRVO).

The study used data from 3 studies. COPERNICUS and GALILEO were randomized, multicenter, double-blind trials in treatment-naïve patients with MEfCRVO. These patients had a central subfield thickness (CST) greater than or equal to 250 mm and best corrected visual acuity (BCVA) from the ETDRS (Early Treatment Diabetic Retinopathy Study) of 20/40 to 20/320. VIBRANT was a randomized, multicenter, double-blind trial in treatment-naïve patients with MEfBRVO who had an ETDRS BCVA of 20/40 to 20/320.

In COPERNICUS, all patients received aflibercept intravitreal injection (IAI) 2 mg on a PRN basis from week 24 through week 100. In GALILEO, patients received IAI 2 mg as needed from week 24 through week 76 and the sham arm received IAI 2 mg from week 52 to week 76. In VIBRANT, patients in the IAI arm received IAI 2 mg every 8 weeks through week 48 and a grid laser of rescue was given if needed at week 36. Eyes in the laser arm that were eligible for rescue treatment received IAI 2 mg every 8 weeks after 3 initial doses.

Participants in the COPERNICUS and GALILEO studies were divided into 3 groups according to the time between diagnosis and treatment: less than 1 month, 1 to 3 months and more than 3 months. VIBRANT participants were divided into 2 groups: under 1 month and 1 month or older. The effect of baseline BCVA was assessed in 3 groups per study.

There were relatively more Hispanic patients in the COPERNICUS study who waited more than 3 months from diagnosis to treatment, but the number of Hispanic participants was low in all 3 groups. GALILEO and VIBRANT had similar demographics in all groups since diagnosis. Mean CST was lowest among those who waited more than 3 months between diagnosis and treatment in the GALILEO and COPERNICUS studies. In the VIBRANT study, the proportion of patients who had a perfused retina was higher in those who had a treatment delay of more than 1 month.

A delay of more than 3 months before starting treatment was associated with less vision gain at week 24 compared to those receiving treatment within 1 month in the COPERNICUS and GALILEO studies. The mean CST decreased to a similar extent in all groups.

In the VIBRANT study, a delay of more than one month before starting treatment was associated with less vision gain at weeks 24 and 52 compared to people treated within one month of diagnosis. However, the mean CST decreased to the same extent in both diagnostic groups.

Patients with a lower baseline BCVA in both MEfCRVO and MEfBRVO had greater visual improvement, but had a lower average final BCVA than patients with better baseline BCVA.

The researchers concluded that these findings underscore the importance of prompt treatment for patients with MEfRVO and MEfCRVO.

References

1.Kalva P, Akram R, Zuberi H, Kooner K. The prevalence and risk factors for retinal vein occlusion (RVO) in the United States from the National Health and Nutrition Survey. Presented at: AAO 2022; September 30-October 3, 2022; Chicago, IL. Abbreviated PO426.

2. Sharma S. Impacts of time from diagnosis to baseline anti-VEGF and BCVA injection on retinal vein occlusion (RVO) outcomes. Presented at: AAO 2022; September 30-October 3, 2022; Chicago, IL. Summary PO394.

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Feds no better than province at treating most vulnerable – Bashaw Star https://philippinecerebralpalsy.org/feds-no-better-than-province-at-treating-most-vulnerable-bashaw-star/ Fri, 30 Sep 2022 19:30:00 +0000 https://philippinecerebralpalsy.org/feds-no-better-than-province-at-treating-most-vulnerable-bashaw-star/

People with disabilities would generally prefer not to have to rely on income support such as Assured Income for the Severely Handicapped (AISH) or other disability benefits.

Again, most people prefer not to deal with a disability at all.

In a previous column, I noted how the provincial government is failing vulnerable Albertans by not increasing disability benefits.

Since this column was published, people living in the disability community have told me that it is not just the province that is failing people with disabilities.

According to a person living on AISH, he can only receive this benefit until he is 65 years old.

Once they reach that age, they are taken off that income support and transferred to old age security.

The problem is that while it’s hard to get by with AISH, the disability amount being well below the poverty line, the old age security pension is even worse.

This problem is compounded by the fact that drug coverage for the elderly varies by region, if jurisdictions have any coverage at all.

A person, currently on AISH, who will move to old age pension in the next five years has been told that unless there is an increase by then, his income will be reduced to between $600 and $1,300 a month, with a minimal medication. cover.

At best, it’s a $400 drop from the AISH award. At worst, it drops revenues by nearly two-thirds.

There are two glaring problems here.

First, disabilities do not magically disappear when a person turns 65.

If anything, illnesses, disabilities, and other illnesses are likely to get worse, not better, so cutting someone when they’re even more vulnerable is just plain cruel and punitive for no good reason.

Second, the message that the federal government and the provinces are sending to seniors, to the people who built this country, is that they don’t matter.

England’s Ambassador to the United Nations, Matthew Rycroft, said during a Security Council debate: “How a society treats its most vulnerable is always the measure of its humanity.”

If this is indeed a true measure of a society’s humanity, Alberta and Canada as a whole get a failing grade.

What is frustrating is that the government knows where the poverty line is. When the government introduced the Canadian Emergency Response Benefit (CERB), payments for people were around $2,000 because the government knew that was the bare minimum most people needed to make it out.

I understand, social programs cost money. I see the benefit of balancing the provincial and national books.

But I also believe in treating people with humanity and compassion, which no government does with the most vulnerable.

Our governments must do better.

We need to stop leaving the most vulnerable behind.

Opinion

]]> Nonprofit hospitals expand charitable care, but not all changes are positive https://philippinecerebralpalsy.org/nonprofit-hospitals-expand-charitable-care-but-not-all-changes-are-positive/ Fri, 30 Sep 2022 19:28:39 +0000 https://philippinecerebralpalsy.org/nonprofit-hospitals-expand-charitable-care-but-not-all-changes-are-positive/

Photo; The Good Brigade/Getty Images

About 84% of nonprofit hospitals updated their charitable care policies from 2019 to 2021, at the height of the COVID-19 pandemic, and according to findings published in Open JAMA Networkthese updated policies have resulted in mostly positive changes.

However, restrictions in charitable care and unclear eligibility criteria are still common and deserve regulatory attention, the authors found.

Overall, 127 of the 170 hospitals in the sample made substantial changes to their charitable care policies, with 242 distinct policy changes in categories such as income eligibility thresholds, asset limitations, and service exclusions.

While most hospitals have expanded charity care, a statistically significant minority, nearly 8%, have actually restricted their charity care.

Unpublicized or vague eligibility criteria – which remain persistent issues – can limit patients’ understanding of charitable care policies and obscure the full extent of policy changes over time. The authors said policymakers should consider requiring greater transparency and simplification of charitable hospital care policies to ensure adequate access to care for uninsured and underinsured patients.

WHAT IS THE IMPACT

Many people rely on charity hospital care to ease the financial burden of healthcare costs; this reliance has been particularly significant during the COVID-19 pandemic given the associated increase in job losses and disabilities.

The specific policy changes primarily involved six criteria: income thresholds for free and discounted care, residency status, presumed eligibility, length of coverage, and underinsured eligibility.

Despite the generally positive changes, some concerns remained. Among the minority of hospitals that restricted charitable care, residency requirements were most frequently restricted, often by limiting access based on immigration status. Some hospitals have added unusual service restrictions such as excluding coverage for services in the custody of law enforcement and excluding birth control.

In addition to this, charity care policies continue to use vague language, especially for eligibility criteria such as assets, which limits patient understanding of charity care policies and can obscure policy changes. over time, the authors said. Third-party tools for determining eligibility are common and may further limit the transparency of eligibility requirements.

Additionally, although underinsured eligibility expanded among the hospitals in the sample, when hospitals addressed specific insurance scenarios common to underinsured status – such as cost sharing and out-of-pocket services network – the results were mixed. Of the hospitals that have limited cost-sharing coverage, some have alluded to contracts with insurers that limit coverage for charitable care, which the authors say is contrary to the spirit of the health care requirements. community benefits from tax-exempt hospitals. The impact of these types of changes on insured patients is complex and difficult to fully assess, given the geographic variations in health costs and insurance networks.

The expansion of Medicaid reduces the uninsured population and could cause hospitals to adopt more generous charitable care policies, but since the results of the specific analysis do not provide enough evidence for this, it remains merely speculation.

THE GREAT TREND

Although information on charity care is sparse, a 2019 report from California Healthline found that hospitals in that state are providing significantly less charity care to low-income patients since the Affordable Care Act took effect. .

As a proportion of their operating expenses, general acute care hospitals across the state spent less than half on such patients in 2017 compared to 2013, according to data the hospitals reported to the California Office of Planning and Development. statewide health development.

The largest drop in charitable care spending occurred from 2013 to 2015, when it fell from just over 2% to just under 1%. Spending has continued to fall since then, although less dramatically.

Health experts attribute much of the decline in charitable care spending to the implementation of the ACA. The law extended insurance coverage to millions of Californians starting in 2014, and hospitals are now treating far fewer uninsured patients who cannot afford the care they receive.

Twitter: @JELagasse
Email the author: jeff.lagasse@himssmedia.com

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